nutrition, treatments

“and now for something completely different”

mountains nature arrow guide
Photo by Jens Johnsson on Pexels.com

Remember how I did a post yesterday about my skin care regime? Yeah ignore that. Much like how lives change, the way I take care of my skin is almost as fluid as my skin itself. Let me explain.

Yesterday I was talking about how I was using two products (Eczema Honey Co.’s Nut-Free Natural Healing Cream and Chuckling Goat’s Calm Down Kefir Lotion), and talked a little about them both. Well last night, Fi was fighting the sleep hard and I couldn’t get her down until around 11pm (after trying for 3 hours!), which meant that I didn’t get to catch up on the massive sleep deprivation from the night before. While I was trying to get her to calm down and sleep through various means, I was using the Chuckling Goat lotion on some dry areas (hands, feet, knees) to help work through some light itching. Finally, the little piglet stayed asleep when I put her down and I thankfully succumbed to my own exhaustion, only to be woken up around midnight by myself scratching the sh*t out of my hands, arms, and feet. It was so bad I could feel my skin starting to weep. Here’s a picture of the aftermath on my hand:

2018-10-17 20.21.01.jpg

When I woke up enough to realize what I was doing, I took some Benadryl and waited for it to kick in and knock me out. But then I had to wake up at around 3am because Fi has been big into not sleeping through more than 4 hours at a time lately, which was rough (I don’t know if you’ve ever tried to cut your sleep short when taking Benadryl, but it is hard to mentally function afterwards).

Today I started the day off (once the Fi routine was completed) with another bleach bath to help level out my skin, followed by rinsing off using the Chuckling Goat Calm Down soap bar, and then using the Eczema Honey Co cream again. I am still very much enjoying it, in fact, it’s time for a mini review!

Eczema Honey Co is a company where the founders live with eczema themselves (always a plus because you know they are actually experiencing the condition they are treating). They currently have 4 products: their original cream, their nut-free (no almond oil) version, an oatmeal scrub, and cotton gloves, and the cool thing about their line is that they have a monthly subscription, which is lovely because when you have eczema all over your body, you know that you’ll need a lot of product. The one I am using is there nut-free cream and so far I love it. It’s only got a few ingredients (Organic Pure Honey, Grapeseed Oil, Organic Grated Beeswax, Organic Sunflower Oil, Colloidal Oatmeal, Pure Spring Water, and Optiphen), which makes it easier to understand what I’m putting on my body (aka looking up the studies on how specific ingredients affect skin). This is an important factor to consider because our skin is quite absorbent and things we put on it can end up in our hypodermis and/or our blood stream (and this is even more true for people with compromised skin like those of us with eczema). Of note: optiphen is a chemical made of Phenoxyethanol, Caprylyl Glycol, and Sorbic Acid, and the biggest concern with it seems to be that it can be a skin irritant according to EWG Skin Deep Cosmetics Database. My opinion on the product overall is that it seems to be the best thing I have tried up to now. I put it on after baths or showers and it tends to hold in the moisture best like I mentioned in my post yesterday, and it smells nice and seems to be helping reduce the major TSW signs: the redness, the dryness, etc. Jury’s still out as to whether it is helping with the itch (currently it seems my itching is worst 11pm-4am and nothing can fix that minus taking Benadryl to knock me out). All in all I think for now, especially given that I have only used it for a few days now, this is the product I am going to stick with and see where it takes me and my skin. The only less than positive comment I have is that it is a bit sticky, but it’s mostly made of honey, so that’s expected. All in all I’m giving it two thumbs up so far.

Now why do I think I am enjoying this Eczema Honey Co product? It may jusr be because their first ingredient is honey, and honey historically has been used topically to treat wounds. The evidence is still a bit iffy on how effective honey really is on wounds other than partial thickness burns, with some studies toting the antibacterial properties when used for wounds (studied on the wound of a stumptail macaque), and other saying that honey can slow healing (of venous ulcers in particular). But all in all, as with most things, I think it comes down to using what you feel is comfortable (and consulting an open-minded medical professional who you can discuss your concerns and questions) to determine what you want to use for your care.

Speaking of skin (which I almost always am), I am currently reading The Little Book of Skin Care: Korean Beauty Secrets for Healthy, Glowing Skin by Charlotte Cho. So far I’m enjoying it immensely, as it goes into detail about how the Korean skincare regiment works in a nutshell, as well as how the mentality of it differs (Cho says that Koreans enjoy their skin care and don’t think of it as a chore). I am trying to think about how those of us living with eczema/TSW could learn to love our skincare regimes. It feels like such a foreign concept, but I can see how it would be an immensely helpful part of healing. So, I am thinking about how to apply what I’m reading in the book to myself and if it works, subsequently to the eczema/TSW community. Keep your eyes posted for that in a bit!

I also wondered if there are estheticians that specialize in eczema/TSW, because that would be awesome. Another idea I had was that if in some world I could learn Korean, it would be awesome to go to South Korea (with my sister who has been studying Korean for years) and experience their skin care ways for myself. But that’s a pipe dream.

On a complete and utter tangent, all I dream about lately is eating That’s It Bites, the blueberry ones in particular. But actually. I go to sleep wanting them, I wake up wanting them, and then when I am sitting around during the day, especially if I get a little bit hungry, I crave them so badly. I think I’ve latched onto them because:

  1. That’s It bars are so good
  2. blueberries are some of my favorite berries
  3. the chocolate truffle version is delicious, particularly the blueberry one
  4. they don’t have any other ingredients in them besides blueberries, apples, and dark chocolate (cocoa, cane sugar  and cocoa butter), and I’m not eating sweets with ingredients I can’t track

So basically if you are ever feeling like you want to send me something nice… send me those – insert winking face here – !

Anyway, in regards to the title of today’s post, what I meant by taking a new direction is that I am trying to figure out what my focus, both hobby and career-wise, will be. I am accepting that my skin is going to be the limiting factor for a while to come and in that interim I am trying to figure out what I can do, not just in the meantime, but potentially forever. I want to be able to start to commit to things again and know that I’ll still be able to do them even with the worst of flares. I know I’ve dabbled with writing for a while, but now I am thinking of taking it seriously (Glob help me!). If you know of any opportunities, let me know (this is my desperate reach out to the universe)!

Tangential parting thoughts: Did anyome know the reference I made with the post’s title? I credit my dad for why things like that are still stuck in my head today.

 

REFERENCES

Jull AB, Cullum N, Dumville JC, Westby MJ, Deshpande S, Walker N. Honey as a topical treatment for acute and chronic wounds. Cochrane Database of Systematic Reviews. 2015 Mar 6;(3):CD005083.

Jull AM, Walker N, Deshpande S. Honey as a topical treatment for wounds. Cochrane Database Syst Rev. 2013 Feb 28;(2):CD005083.

“Optiphen.” EWS Skin Deep Cosmetics Database, https://www.ewg.org/skindeep/ingredient/732140/OPTIPHEN/. Accessed 17 Oct 2018.

Staunton CJ, Halliday LC, Garcia KD. The use of honey as a topical dressing to treat a large, devitalized wound in a stumptail macaque (Macaca arctoides). Contemp Top Lab Anim Sci. 2005 Jul;44(4):43-45.

Advertisements
all posts, the eczema body, treatments

there are germs on my skin! part 2

selective focus photography of person wearing three bangles
Photo by Godisable Jacob on Pexels.com

It’s my favorite time of year and I just received my Chuckling Goat package (but more on that in a bit).

2018-10-02 13.40.38

A few months back I wrote a post about the skin biome and how I was excited by the small movement of companies creating products geared towards helping it. Since then there have been developments about different companies creating products to help either work with the natural skin biome or to help reintroduce micro-diversity to create an appropriate balance for healthy skin.

I didn’t know it previously, but Johnson and Johnson had a movement a while back to create products that didn’t mess up the skin microbiome of babies’ skin. Such products, like Aveeno Eczema Therapy Moisturizing Cream have a trial indicating that they actually help to increase the microbiome diversity of the skin with use over time.

The company has become skin microbiome-focused in a multitude of ways, including offering use of their JLINX incubator under the JLABS. S-Biomedic has joined JLINX and is working to create products that remove the bad bacteria and replace it with good ones to balance out the diversity of the skin back to a healthy level. This idea of balance is becoming more and more accepted as it is found that overuse of antibiotics is causing more harm than good for conditions like eczema. Studies are showing that balanced diversity is what we need for our skin biome, rather than sterility (noting that antibiotics still have their place, including when surgery or infection is involved). Microbiome transplants are now no longer a thing of the future but are instead potentially the next big medical treatment protocol!

More recently, I read a book called The Good Skin Solution by Shann Nix Jones, that talked about the gut and skin microbiome and Jones’ personal experience as to how she came to develop a treatment to help manage her young son’s eczema. The goal was to help increase the diversity of both microbiome using the probiotics in kefir made from their goats’ milk. When it was a success with their son, her and her husband decided to sell their products and hence the Chuckling Goat business was born.

Jones reintroduced me the theory that you need to fix your gut microbiome to have any really lasting effect on your skin, but she added the idea that it’s best to treat both at the same time, (hence her her program that includes probiotics for both the skin and the gut). Needless to say I was intrigued so I looked into her products and went on to order some (but unfortunately I can’t get the kefir drinks because I live in the states and they don’t ship that outside of the UK).

Today the soaps and lotions arrived and I am beyond excited to receive them (happy as a clam… or a ceramic jack-o-lantern!). See my spoils below:

2018-10-02 13.40.42

I’ll have to figure out what to do to increase my gut flora diversity in lieu of kefir, as I was advised to avoid dairy while breastfeeding to see if that helped with Fi’s digestive woes. I’m not sure if goat milk would be okay since it is supposed to have less allergenic components than milk. I may just wait until Fi is done breastfeeding.

 

REFERENCES

Capone K, Klein SL, Kirchner F, Tierney N. “Effects of Topical Lotions on the Atopic Dermatitis Skin Microbiome and Associations with Itch and Skin Barrier Function.” 76th Annual Society for Investigatiev Dermatology (SID) Meeting, Portland, OR. 26-29 Apr, 2017. Poster presentation.

Myles IA, Earland, NJ, Anderson ED, Moore IN, Kieh MD, Williams KW, Saleem A, Fontecilla NM, Welch PA, Darnell DA, Barnhart LA, Sun AA, Uzel G, Datta SK. First-in-human topical microbiome transplantation with Roseomonas mucosa for atopic dermatitis. JCI Insight. 2018 May 3;3(9):e120608.

Parikh-Das A, Ganopolsky I, Nunez C, Moreira L. A clinical trial to evaluate the efficacy of a OTC colloidal oatmeal skin protectant cream in the management of mild to moderate atopic dermatitis in infants and toddlers. JAAD. 2017 Jun 76(6);AB10.

Puniewska, Madgalena. “How the Microbiome Could Transform Your Skin in Surprising Ways.” Johnson&Johnson Innovation, 12 Oct. 2017, https://www.jnj.com/innovation/how-the-microbiome-could-transform-your-skin-in-surprising-ways.

 

all posts, treatments

review: moisturizers

abandoned antique architecture building
Photo by Pixabay on Pexels.com

I think one of the universal aspects of having a skin condition is you get used to using a bunch of different topical creams and lotions and ointments. At this point in my life, I am no stranger to the variety of products in the market (though new ones are always being developed) and I’ve formed my own opinions about what works or doesn’t work for my skin (though that also varies depending on what stage my skin is in at the moment).

A+D – First Aid Ointment: Generally, I use this much like I use Neosporin (mostly for cuts and scratches). This does have lanolin which can cause allergic reactions for people. I think this works fine if you don’t have allergies, though it’s too sticky to apply over the whole body. I think Neosporin generally works a bit better (maybe because it usually has a type of antibacterial in it?).

Aquaphor Advanced Healing Therapy Ointment Skin Protectant: I’ve used this brand and the retail store-brand versions. This feels a bit like applying Neosporin to the skin, but more watery. Generally it didn’t feel bad on the skin, but was a bit sticky. Overall, it didn’t really help me enough to keep moisture in to warrant repurchasing it at the time, though I wouldn’t mind using it again if I had another bottle of it lying around.

AveenoActive Naturals Daily Moisturizing Lotion: I find this type to be a bit watery, and it tends to burn a little bit if the skin is raw. To be fair though, I haven’t tried a lot in their line besides this particular product. Apparently their Aveeno Eczema Therapy Moisturizing Cream helps improve the diversity of the skin’s biome.

Avène Eau Thermale Avène Skin Recovery Cream: I actually haven’t tried this brand at all yet, but I have heard good things about it, and this cream I would love to try. Avène has a spring called Saint Odile in France that apparently has very lovely healing properties, and so spas and other treatments have developed there using the water, including hydrotherapy. There is also an Avene company in the USA, which I think also uses the water from France.

Burt’s BeesShea Butter Hand Repair: I’ve been using this along my whole body and generally love it. It is a little thick, but as you spread it, it melds well into the skin and is pretty effective as keeping some moisture in so long as I wear layers over the skin. Downsides is the amount isn’t made for someone using it along their whole body (and technically isn’t made for the whole body as it’s a hand cream!).

Cera Ve Moisturizing Cream: I’ve used a variety of their products. While I have no complaints with them, they are generally a bit too pricey for me for the amount I need and don’t offer as good of benefits as other brands. When I did buy it, I usually went for the bulk size one to get the best price per quantity.

CetaphilMoisturizing Cream for Dry/Sensitive Skin: Generally feels like a watered down Cera Ve. I’m not a huge fan of them. Note: A friend recently told me that Cetaphil products contain almond oil- so for those with a nut allergy, this is not the lotion for you!

(NEW!) Chuckling GoatCalm Down Kefir Lotion: I use these for the inflamed days as it seems to help dry out the excess heat and redness. It doesn’t help keep in moisture so I use it early in the day and then apply something stronger to keep in moisture later on. It goes on fairly gently.

(NEW!) Chuckling GoatSoothing Kefir Lotion: This one smells nice but didn’t feel as good as the Calm Down version.

Coconut Oil (pure) –  Vita Coca Organic Virgin Coconut Oil: I’ve heard great things about the benefits of coconut oil for keeping staph infections at bay and helping to reduce a lot of eczema symptoms. Personally I do like using coconut oil but it feels like it doesn’t absorb as well in to the skin, and it doesn’t really provide lasting moisturizing effects throughout the day so I have to use it with something else. It does seem to help with skin redness though.

ConquererSoothing Dry Skin Balm: This is Abby Lai’s brand (of Prime Physique Nutrition) and lately I am loving it. When my skin is cracking, this is one of the few products that can help calm the skin down, though it does take a while. My only complaints would be the size of the container (I’d love a larger tub of it), and that it is somewhat grainy and so it took a lot of rubbing in to get it to melt into the skin. The latter isn’t a deal breaker though- and I’m not sure if it was just my container from heat or cold transportation that caused it to become so granular.

Curél Ultra Healing Lotion: I have used this product a few times but so intermittently that I can’t really accurate review it. It feels nicer on application than Cera Ve and Cetaphil.

DoveDermaseries Eczema Relief: This is Dove’s new line. I generally like it though it is more on the lighter scale. It’s a bit pricey and also doesn’t last as long if applied after a shower/bath as I would like.

(NEW!) Eczema HoneyHoney Natural Healing Cream: This one tends to provide a better barrier and seal in moisture, plus the honey works as a natural antibiotic. The downside is that it separates from the oil in the mixture pretty quickly so I have to stir it a bit before use. Also, as it is mostly honey, it’s sticky!

EucerinAdvanced Repair Cream: This is one of the lighter types of their line. I liked it because the normal Eucerin was just too thick (and also didn’t absorb well into the skin if the skin was wet/damp). This version however, can tend to burn on application.

(NEW!) ExedermEczema Care Daily Lotion: I recently came across this in CVS and gave it a go because it was endorsed by NEA. I found that it really did help relief the intense dry/cracking I have been having, especially with my hands, but it doesn’t last long as a moisturizer (but to be fair, I got the daily lotion, not the daily moisturizer). All together I am using this product almost exclusively now and am pretty happy with it for the dry/cracking/wrinkly skin face (google TSW knee/hand/wrist wrinkles for an idea of what my skin looks like during this phase). The one down side is, this product tends to be hard to find and not in many stores yet (or at least not that I’ve seen).

(NEW!) Exederm Intensive Daily Moisturizer: I’ve been using this product a lot (pretty much exclusively for a few weeks now). It isn’t too watery, and coats my skin nicely and does get absorbed well. I’ve noticed it can cause me a bit of itchiness if I apply it after a hot shower/bath (which I technically should be avoiding anyway).

L’OréalParis Collagen Moisture Filler Day Night Cream: I grabbed this because I was looking for a creme to apply to my skin that contained collagen. This one is okay. It is quite fragrant which I’m not a fan of, and it tends to dry me out after application within a few minutes. Overall I don’t think I’d buy it again, though if I couldn’t find any other collagen-infused creams I might repurchase it.

(NEW!) MG 217 – Eczema Body Cream with 2% Colloidal Oatmeal: This is a newer one I’ve been trying. It has a smell that reminds me a bit of menthol and it feels a bit stickier when it goes on, but it generally doesn’t burn and it dries quickly. I like it because it feels like it coats the skin evenly, but it often is unable to help me stop my drying out when I’m in that aggressive phase of that stage. All things considered I will be getting it again.

NeosporinOriginal First Aid Ointment: I generally only use this for cuts or deeper scratches, and then try to cover them with band-aids to keep in the moisture. Neosporin generally feels good on the skin (no burns or anything- and some types contain pain relievers), but is quite oily and I wouldn’t suggest it for use for the whole body. I do use it overnight a lot when my hands and feet are cracked

Reviva: Collagen Night Creme: I do enjoy this collagen cream, though it only comes in small quantities. It helped reduce a pretty red flare that was starting on my face in two days, which was a great relief. I usually saved it for my face and hands because it does come in so little amounts, but I think it helps overall.

Sunflower Oil (pure) – Spectrum Naturals Organic: Sunflower oil also has studies supporting its use for people with eczema (so long as you don’t develop an allergy to it). It is a bit of a hassle to apply as it is a pure oil, and it does dry pretty quickly, and overall I don’t dislike it. I don’t really use it anymore because I did develop an allergy to it over time.

VanicreamMoisturizing Skin Cream for Sensitive Skin: I received samples of these to try from my phototherapy sessions. They didn’t burn during application which was nice, but they did feel a bit watery and didn’t real help retain moisture.

Vaseline Pure Petroleum Jelly: I have mixed feelings about Vaseline (and in generally petroleum jelly). In general, I hate the feeling of being sticky and having to apply it is a nightmare. When I do use it, I use the pure thick stuff and it used to help keep moisture in my skin but more so when I was on antibiotics and oral steroids. When I’m not on those medications and/or when my skin is not flaring, I find Vaseline to be too much and it often makes me breakout in acne. When my skin is flaring too aggressively, Vaseline tends to trap heat better than it traps moisture. Lately I tried it when my skin was unbearably dry and nothing was working, and Vaseline didn’t help. It just made me feel sticky.

YORO NaturalsOrganic Manuka Skin Soothing Cream: I am loving this product. It feels a little more sticky than the usual culprits (like Exederm), but it keeps my skin hydrated longer. It smells pretty good as well. My only complaint is that it comes in such small amounts.

 

I’ll add more products to this post as I use more (or remember which ones I’ve used in the past).